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When Chet Cooper,
from this fine magazine, called me up one Saturday and asked me if I wanted
to go to a international disability conference in Doha, Qatar, I immediately
said, Sure, of course, wouldnt miss it for the world,
not knowing where Doha, Qatar was located, how to pronounce the word,
Qatar, or even why I should be invited to such an august gathering
a half a world away. Im not a leading world disability advocate
or activist; I dont run a prestigious organization like Autism
Speaks or the British charity, SCOPE. Im just, you know, disabled,
a wheelchair user for ten years who writes TV shows and pop-culture books
and recently wrote a book about life after paralysis. Even after a decade,
I still feel like a babe in the disability woods. Im still making
embarrassing verbal gaffes like saying disabled person instead
of person with a disability or wheelchair person
instead of wheelchair user. Ive even been known to use
the word handicapped on occasion, raising the hackles of every
right-minded disability cognoscente in earshot. Im new here, I tell
them; Im still getting use to just being disabled and not yet engaged
in the Augean task of politicking and organizing for disability rights.
But the theme of the Qatar conference this yearformally called The
Second Annual International Forum on Children with Special Needswas,
to quote the brochure, to highlight media as a positive change agent
in the transformation of disability. Because I hope my book is a
positive change agent in the way people view the disabled,
I saw that I might have a place at the table, so to speak. And I was,
and am, dying to travel, to seeing the world from 54 inches off the ground.
Plus, Chet had another great media idea. Since I had spend a good part
of my career making and writing documentaries, why not make one about
this event, not to mention the exotic Middle Eastern country we were about
to experience first-hand?
And so our little party of fourChet, cinematographer and old friend,
Paul Goldsmith, field producer Columbine Goldsmith, and myselfembarked
on The Road to Qatar.
Before I describe what we encountered, let me say thisthis conference
and this trip combined were genuinely mind-broadening, to bend an old
cliché. Qatar is a fascinating place, a country in the process
of inventing itself at lightening speed and a cultural juncture between
East and West. The conference, a truly world-class gathering that included
every one from Cherie Booth, QC, the wife of the prime minister of Great
Britain, to people of modest means on the front lines of disability education
from Ghana to Brunei, was in itself a visit to a strange new land, at
least for me. Ill be processing the images and information I gathered
from the whole venture for years to come.
The international forum was sponsored by the Shafallah Center for Children
with Special Needs, an advanced educational facility created under the
patronage of Her Highness Sheika Mozah Bint Nasser Al-Missned, the First
Lady of Qatar. I have nothing to compare it to, personally, but guest
speaker Anthony Kennedy Shriver, related to all the other famous Kennedys
and Shrivers and chairman of Best Buddies International, an outreach program
for kids with intellectual disabilities, said Shafallah was without a
doubt the finest facility of its kind in the world, an enormously
important symbol [for] what it represents for the whole Middle East and
what it represents for the world. My guess is that he should know.
Hes probably toured every such facility out there.
What makes Shafallah so special? A member of the Shafallah staff, the
Assistant Director of Training and Development, Sarah Hannibal (more about
her later), briefly ran it down for me. One reason, she noted, was the
immense amount of support and backing we receive from the Emir and her
highness Sheika Mozah. Its a social priority in Qatar to help
kids with special needs. I dont know this for a fact, but my guess
is that few other regimes in the region have this at the top of their
to do list. The Qatari government is small enough, and rich
enough, to focus on a priority like this and pay for it. The layers of
bureaucratic entanglement are thin.
Secondly, the teachers are well-trained, according to Sarah, many getting
in excess of 30 hours of professional development training every year.
The in-house staff represents over twenty-five different countries and
the center is constantly bringing experts in and sending staff out to
other countries to learn more. The forum itself is just one such occasion
for the center to build cooperative programs with groups like Autism
Speaks and Best Buddies. It seems to be setting itself
up as the nexus of a world educational network, not unlike a medical research
facility like the Cleveland Clinic or Memorial Sloan-Ketterling Cancer
Center.
Then there is the place itself. The Shafallah Center is a visually stunning
site, an expanse of low-rising white-white buildings in a compound on
the edge of Doha. Like everything in Qatar, it feels like it was built
yesterday. Its pristine chalk white walls are covered with art work by
the children whom it serves and the endless archways and marble-floored
entry rooms make you feel like youre weekending in a royal desert
retreat. Even the lecture hall is exotic, a seamless round white dome
where images could be projected on every surface. This is not the pre-fab,
fake-wood-siding special ed bungalow situated behind P.S.
14. This is a palace of learning.
But then again, it fits right in with the emerging metropolis of Doha,
not like any city youve ever seen. Qatar is a thumb-shaped emirate
situated along the coastline of the Persian Gulf and Doha is like an urban
mirage rising at the edge of the desert. Think of the meteoric rise of
Las Vegas in the era of Bugsy Seigel, from desert dust to the Stardust
in a roll of the dice. But this isnt a garish gambling Mecca (no
Islamic pun intended); this is a new world city. Hundreds of skyscrapers
are under construction, with a goodly percentage of the worlds building
cranes on lease. To our eyes, it seemed like they were building two identical
50-story edifices at every site, like the contractor had talked them into
a two-for-one sale. At one point Paul shot the city at dust from across
a small in-land waterway. As a thousand lights from a forest of half-built
towers blinked on at once, it didnt seem real. It looked like some
cinematic computer animation that Hollywood created for a city on the
moon.
Currently, Qatar has no unemployment, no observable crime, no smog, no
graffiti, no gangsta rappers, no public drunkenness, and no car that we
could findand we looked hardbuilt before 1985. And electricity
is free. More than one person told us that Qatar had the highest per capita
income in the world; it just passed Luxembourg or something. Seventy-five
percent of its roughly 800,000 inhabitants are guest workers from places
like India, Malaysia, and the Philippinesthe band playing in the
bar at the Sheraton Doha, one of the only places to drink in this alcohol-free
country, was all Pilipinocalled Life After Darkand
they did a mean rendition of the 70s pop classic, Id
Really Love to See You Tonight. The other 200,000 denizens are native
Qatarians and they are the only people allowed to be citizens to date.
They run things. And they are no slouches at it.
Okay, the place is not perfect. The traffic did seem to be headed toward
grid-lock status, there were very few accessible hotel rooms in the whole
city, and you probably cant walk around saying slanderous things
about the powers that be and last long. But women can drive, vote, and
seemed to be in positions of authority, at least around Shafallah. That
certainly didnt fit the common stereotype of a Middle Eastern society.
Dr. Ronald Brown, an American education specialist attending the forum
who lives in nearby Abu Dhabi and is a longtime Arab-watcher, explained
the particular appeal of the Qatari experiment. He said that among all
of the Arabs he had worked with, the Qatari leadership was the most adventurous
in their vision of a future society. Besides a forward-looking institution
like the Shafallah Center, they had also created an education city
within Doha to house satellite campuses for American universities like
Texas A & M, Georgetown, and Cornells Weill Medical Center.
They are actively pursuing cross-cultural pollination through sponsoring
international events like the 15th annual Asian Games. And Qatar is also
home to what could arguably be called the Voice of the Middle East, the
Arab TV network, Al Jazeera. Even some high-ranking Qatari officials mumbled
about what they perceived as Al Jazeeras blend of journalism and
opinionnot that any American network would ever be guilty of such
sinsbut no one doubts Al Jazeeras increasing power and influence
in shaping the New Middle East.
The term Dr. Brown kept using to describe the whole gulf Arab culture
was gracious. Arabs, he said, have a long tradition of hospitality,
generosity, respect for others, and personal warmth. There was not one
Arab, at the conference or on the street, that didnt come across
this way. Maybe we were gullible victims of a giant con job, but I dont
think so.
Just the word Arab is scary to most Americans. See a guy in
a traditional head cloth (called a kufiyya) and black coils (called the
agal) walking around the local mall and the general thought bubble (or
at least my general thought bubble) is terrorist, terrorist
sympathizer, or at the very least, freedom hater. Gracious,
kind, thoughtful, generous, and you
know, just another human being, is not the momentary assumption.
Well, for the sake of the emerging world order, think again.
The first Arab we hung out with was Rami, our driver and guide on a desert
safari on our first day in town. He was born in Lebanon but had moved
to Qatar at age one. He was a wild man; his nickname was The Desert
Fox. Along with a caravan of ten other SUVs, he drove us down
the highway until it just stopped in the middle of nowhere. While the
drivers deflated their tires for desert traction, the rubes rode around
on the back of a camel and felt like Omar Sharif for about a minute and
a half. Then, as Rami played the Backstreet Boys on cassette in his souped-up
four-wheel-drive Nissan, he assaulted the endless sand dunes south of
Doha like a skateboarder in an empty swimming pool. On the way out to
the sands, he pointed out the single pipeline that brought natural gas
from the outback of Qatar to the coastal refineries and made this specter
of a world-class country possible.
The Shafallah Forum opened with a speech by UN Ambassador Luis Gallegos
of Ecuador outlining an important global bench mark in the recognition
of people with disabilitiesthe recently approved UN Convention on
the Rights of Persons with Disabilities. Though I got lost in all the
bureaucratic verbiage about protocol, process,
and implementation, it was clear this was a new day for the
global disability communitya paper declaration that set a world
standard for the fair treatment of the disabled. The Sheika herself was
present for this proclamation, the Qatar equivalent of the President throwing
out the first baseball of the season. She was stunningly beautiful, completely
accessible to anyone who wanted to say hello, and clearly there for more
than a photo opportunity. For whatever reasonand we could never
quite find that outshe had a passion for working with children with
special needs.
Among all the heady talk about a worldwide campaign to improve the lives
of the disabled, a number of participants with disabilities joined the
gathering and brought the whole thing down to street level. After the
first evenings dinner banquetthe food at this event deserves
its own gourmet chroniclea young lady stood up and said we were
about to watch a movie about a 39-pound man. No one would admit it under
oath, but half the audience was no doubt itching to slip away and go check
out the Pilipino version of The Shirelles in the Drinking Hole
on the second floor. (The preferred pre-dinner cocktail in Qatar was fresh
kiwi or strawberry juice.) But no one bolted for the bar. We all sat politely
and watch the documentary, called 39 Pounds of Love. And we were collectively
blown away. ...
continued in ABILITY Magazine
Travel arrangements
provided by Qatar
Airlines
Read Allen
Rucker's own story in our Teri Garr issue
ABILITY Magazine
Other articles in the Frankenstein issue include Emme AronsonCouples
Fighting Depression; Car WarsMay the Force be Green and a Q&A
with Toyota; Humor Therapy; Pet Peeves; All the World's a Stage, But How
Do I Get a Ticket to the ShowDisability Legal Rights Center; Iraq
VetsHealing on the Slopes; Virginia TechLessions to be Learned;
Chop ChopTry a Raw Food Diet; ABILITY's Crossword Puzzle; Events
and Conferences...subscribe
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