The following is an excerpt from Riding the Bus with My Sister: A True Life Journey

“Wake up,” my sister Beth says. “We won’t make the first bus.”

At six a.m. on this winter morning, moonlight still bathes her apartment. She’s already dressed: grape-juice-colored t-shirt and pistachio shorts, with a purple Winnie the Pooh backpack slung over her shoulder. I struggle awake and into my teacher-and-writer-off-for-a-day clothes: black sweater, black leggings. Beth and I, both in our late thirties, are eleven months apart, but we are different in more than age. She owns a wardrobe of blazingly bright colors and can leap out of bed before dawn. She is also a woman with mental retardation.

I’ve come here to give Beth her holiday present: I’ve come to ride the buses.

For six years she has lived on her own. In her subsidized apartment, a few blocks off the main avenue of a gritty, medium-sized Pennsylvania city, each of her days could easily resemble the next—she has a lot of time, having been laid off from her job bussing tables at a fast food restaurant. She has enough money to live on, as a recipient of government assistance for people with disabilities.

But Beth also has something else: ingenuity.

This isn’t a trait generally ascribed to people who live on the periphery of society’s vision. Like indigent seniors, people with untreated mental illness, and the homeless, Beth is someone many people in the mainstream don’t think much about, or even see.

Six months after she moved to her fifth-floor apartment, she realized that she was lonely and had consumed all the episodes of The Price Is Right and All My Children that she could tolerate. So one day she decided to ride the buses. Not just to ride them the way most of us do, which her aides had trained her to do a few years before. She wasn’t interested in something as ordinary as getting from one location to another. She wanted to ride them her way.

It was, Beth recalls, October 18, 1993, when for reasons she cannot remember she first picked her monthly bus pass off her coffee table. Then she pressed 1 in her high-rise elevator, walked through the vestibule to the street, hailed a bus on the corner, climbed the steps toward the driver, settled into a seat, and looped through the city from dawn to dusk, trying out one run after another, bus to bus to bus. Soon she was riding a dozen a day, some for five minutes, others for hours, befriending drivers and passengers as she wound through the narrow streets of the city and its wreath of rolling hills. Within weeks she could navigate anywhere within a ten-mile radius, and, by studying the shifting constellations of characters and the schedules posted weekly in the bus terminal, she could calculate who would be at precisely which intersection at any moment of any day. She staked out friendships all over the city, weaving her own traveling community.

Beth’s case manager had not suggested this, nor Regis and Kathie Lee, nor even Beth’s boyfriend. This was her idea alone.

We hurry down Main Street, the moon setting behind the buildings. My guide, whose fuzzy brown hair is still wet from her morning bath, points out the identifying numbers on bus shelters, the scowls of grouchy drivers. She wears no watch, telling time instead by the buses.

We dart into the downtown McDonald’s, already, at six-thirty a.m., filled with early risers: clusters of the elderly playing cards, the unemployed bent over newspapers. Beth orders coffee, though she doesn’t drink coffee, palming out the eighty-four cents before the server asks.

Then we bolt into the dawn, making a beeline for a bus shelter. Head craned down the street, she giggles as she once did when I took her to a Donny Osmond concert: thrilled, in her element. She clutches her yellow radio and a tangle of key chains—twenty-nine, by her count—Cookie Monster, smiley faces, peace signs, which hold a total of two keys. She does a drumbeat on her laminated bus pass, stickered 00001. Every month she renews it, arriving first in line at the sales window. That sticker is her private coat of arms, proof that she’s queen of these routes.

Our first bus draws up to the curb. The driver, Claude, throws open his door as if welcoming us to his house. Beth clomps aboard, arm thrust forward with the coffee. He takes the steaming plastic cup, then thumbs four quarters into her hand. “Our agreement,” he explains
to me.

Then she spins toward her seat—the premier spot on the front sideways bench, catty corner from his, so she’ll be as close to him as possible. I sit beside her; as a suburbanite who relies on my car and the occasional commuter train, it is my first time on a city transit bus in years. We pull out, past working class row houses, a Christian lawn ornament store, a farmer’s market, an abandoned candy factory, Asian grocers. Short, just-beginning-to-gray hair fans out from underneath Claude’s driver’s cap; Beth announces that he’s forty-two, with a birthday coming soon. He laughs as she offers the exact date and explains just how he likes to spend his birthdays. “She remembers everything,” he says.

He asks if she’ll change into her flip-flops, should this chilly day become as balmy as the forecast predicts. “If iz over forty,” she replies, “you know I will.” He tells me they jam with her radio when the bus is empty. “Real loud,” she adds. They recall some trouble with a rider months ago. “She was mean, “ Beth says indignantly. Claude agrees, and recounts the altercation, in which a passenger vehemently challenged his knowledge of upcoming stops, and which culminated, after the malcontent had finally exited, in Claude’s relief that Beth was sharing the ride—he had someone who could sigh along with him. Moments later, we pass alongside Beth’s boyfriend on his bicycle. Also an adult with mental retardation, Jesse is paused at a crosswalk, his maple brown face pointing straight ahead, his blind right eye looking milky in the light, sun glinting off the helmet Beth long ago convinced him to wear. The decade they’ve been together is almost a fourth of their lives. Claude picks up his intercom mike and calls out “Hello, Jesse!” Jesse looks over. We twist around in our seats, and his mustached face brightens as we wave.

All day, when we mount Jacob’s bus, Estella’s, Rodolpho’s, one driver after another greets Beth heartily. They tell me she helps out: reminds them where to turn on runs they haven’t driven for awhile, teaches them the Top Ten songs on the radio, keeps them abreast of schedule and personnel changes, and visits them in the hospital when they’re sick. She assists her fellow passengers as well, answering questions about how to reach their destinations, sharing their consternation when the bus halts for double-parked delivery trucks, carrying their third bag of groceries to the curb.

In return, many riders smile hello to her and ask how she’s doing; many drivers are hospitable, even affectionate. Jacob asks if she has gotten a new winter coat and if the homeless woman who clashed with her last month has bothered her again. Jack slips her money for soda. Bert squawks out songs, making her laugh at his jaggedy tunes.

Not everyone is nice. Some drivers, I learn, call her The Pest; when they see Beth at a stop ahead, they cruise right by, gaze glued to the road. Some riders warn them, crying out, “Keep going!” when they spy her waiting on the curb, and if she climbs on they bleat in her face, “Shut up! Go home!”

“I don’t care,” she shrugs. When we were growing up, I saw a twinge of anguish on her face whenever kids called her poisonous names, and sometimes the hurt took hours to fade. Now I see that, surrounded by friends, she regains her composure quickly.

That’s not all that has changed, I discover. Beth, once a willful child who, like many willful children, felt most secure at home, has grown into an extravagantly social and nonconforming adult, one who creates camaraderie out of bus timetables, refuses to trouble herself when people look askance at her—and, in a buoyant refutation of the notion that mental retardation equals sluggishness, zips about jauntily to her own inner beat. My sister (My sister! I boast to myself) maneuvers through the world with the confidence of a museum curator walking approvingly through her galleries, and, far from bemoaning her otherness, exults in it.

That afternoon, as I step to the curb and wave goodbye to her through the bus window, I am pierced by a sudden memory, minted only this morning. She was sailing her short, stout body across the street toward McDonald’s, I was scrambling behind. And in the predawn moonlight, as she chattered on about our labyrinthine itinerary, well aware that there are few if any other people in this world devoted to a calling of bell cords and exhaust fumes, she spontaneously threw back her head and trumpeted, “I’m diffrent! I’m diffrent!” It was as if she was hurling a challenge with all her might beyond the limits of the sky.

From Riding the Bus with My Sister: A True Life Journey by Rachel Simon.
Used by permission of Houghton Mifflin Company. Copyright 2002 by Rachel Simon. All rights reserved.

A made-for-television movie starring Rosie O’Donnell and Andie MacDowell is currently in production.
Riding the Bus with My Sister is available on Talking Books for people with visual impairments.

Other articles in the Kevin Richardson issue include— Volunteerism and Sean Astin, Awards/Galas—New Ability Awards & Western Law Center, Picture Perfect Kids, Marilyn Bartlett and the ADA, Seeing in the Dark, Headlines, Customized Employment, Events/Conferences, Humor Therapy...subscribe!